October 13, 2009

Back in the Game

After months of anguish involving our insurance and a drug called Prograf, getting my adoption records opened and trying to register with my Native American Indian tribe, we have finally found some relief. It looks like we will be able to get our Prograf.
Our family started a journey a few months ago that has been both painful and heart-wrenching. We have gone down roads that I never expected I would ever have to travel on. Searching for my adoptive parents was one of them. This was something that I was not eager to do.
As most of you know, our insurance coverage changed when the economy went all crazy, and as a result the anti-rejection drug Prograf came off the table when the new plan went into effect. This backed us into a corner trying to figure out how we were going to be able to come up with the thousands of dollars a month to pay for this one drug alone that I will have to take for the rest of my life. We were told by the transplant center that there would be no transplant if we couldn't get aftercare drugs -- something our insurance plan originally covered.
This past week we were notified that our insurance will offer an option that will cover Prograf. The insurance will be expensive, but nothing compared to the cost of the drug without insurance. We were overwhelmed, to say the least. Over these past months we have been blessed to have so many people step forward to help out in whatever way they could. Some offered advice, some legal counsel, and some offered friendship. There were many prayers and many thoughtful wishes. Lois and the girls and I are thankful to everyone who has helped us along this journey.
While all of this has been going on, it has also opened up some questions about my adoption records. We have court records showing that I have two sets of names for my parents. How does that happen? Well, we aren't sure, so we are still going to try to figure out all that. It also suspends any hope of trying to get registered with the Indian tribe. We were asked by a representative of the tribe to get the original birth certificate so they could run it against their membership. We did that, but that individual never responded when we tried to contact her to let her know. Most of that problem can be attributed to just one person who doesn't seem to care about our request. Maybe we will have to talk to someone higher up in the tribal council or make a run to Arizona. One step at a time.
Again I have no words. We thank you all.
And YEA, Prograf!

5 comments:

*mary* said...

YAY! What a relief. And that is just me talking, so I can imagine how you guys must be feeling!

Laoch of Chicago said...

Great news!

kristine said...

wonderful! crazy you even had to go through it all but wonderful that it's turned out like it has.

i'm celebrating in spirit with you guys!

Krëg said...

Hooray! Awesome news!

Pop and Ice said...

Glad to hear that your insurance woes have been resolved. God knows what a nightmare that can be. Hope all the rest of our medical plans go much more smoothly.

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